Tuesday, January 27, 2015

Like My Mother Does......




Well, the days are getting longer, and things are looking brighter and life is good!  I am often asked how I can take so much & keep on moving forward with such enthusiasm.  So this week, I took some time to reflect on how I got here, and what is it that keeps hope alive so strongly within me.  How is it that I always seem to give more when I should probably feel like giving up?  It is very simple.  The answer came easily.  It is a choice!

I often say it is the children and grandchildren who give me the strength to continue on this journey. We all know that #TEAMNANNY is a huge gift to me and that we bleed yellow!   And while that is true, that they give me purpose to face another mountain, it is not always that simple.  Sometimes it is very lonely being like I am, but then I just have to call for a play date with one of them, and I am immediately brought back into the present and we play, we are silly, and we are ALIVE!!  An outing with a daughter is cool too.  I am with my husband 24/7 and he is quite simply the light on my darkest days, and he believes in me.  He supports all my dreams no matter how crazy they sound sometimes.  

I was not supposed to be still alive in 2015 because my prognosis was so dismal, so how dare I not reach out when I get down.  I have the most supportive family in the world, and they are always willing to help.  I am not always willing to "ask" for help mind you!  I am getting better at it!  

This joy that I have for life did not begin with #TEAMNANNY mind you! I have been sick pretty much my whole life with one illness or another.  Family know my extensive medical history, surgeries, hospitalizations, medical journeys with lupus and cancer have taken a lot from me.  But despite the physical and emotional challenges I have on this journey I am happy.  I mean I am really HAPPY.  I would not trade me the way I am for anybody else on the planet.  I am INSIDE out HAPPY.  The kind of happy when you thank God every single day for the blessings he has bestowed upon me.   The kind of happy that your #gratitude list is infinite.  

But from the very beginning of my life, to be able to survive a life of illness I needed a much greater inner strength.   You are not born with that strength.  I am sure genetically I got my hard head from my DNA, after meeting my birth family ten years ago, it was apparent that we are survivors each in our own way.  I was blessed the day I was adopted.  The day my mom and my dad chose me to be their own, my parents changed my life forever. I know they sure as hell did not know what they were signing up for but that their deep faith carried them through.  I must have done OK, since they decided to do it all over again with Danny two years later.  I could not have chosen a better baby brother! While growing up we had our share of sibling rivalry, he has been the most supportive brother a sister could ever wish for.  

We had a solid foundation of unconditional love.  I was raised to appreciate life, all life.  Find the good in every situation.  And remember to say thank you! Lesson #1.  Nailed it! :) 

I knew I was loved.  I knew I could screw up and they always had my back.  And that is true until today.  While I was always aware of how incredibly proud my parents were of me, it must have been hell these past few years on my mom to see how beat up I have been from my cancer and lupus and amputations.  It is hard on the family here who see me struggle on a daily basis.  My sweet husband has been through the worst of it with me, and I have seen the look on  his face sometimes. When the fear takes him down, and the doubt takes him under, it just makes me just more determined to win.  After all he is my backbone, my cornerstone, my crutch when my legs stop moving.  

While I knew my whole life that I was "Daddy's girl", and a princess in his eyes, (if tom boys can be princesses?).....he was my hero.   He survived war and illness, cancer and so much more.  I miss him every day.  But I know that I am glad he was not here to see me like this, struggling with every mountain that is put in front of me.  It would have completely broken his heart, and he would have felt helpless.  But mom would have been there to remind him that "she will be OK", like she did for so many years.  

My mom was the caregiver in our family.  She took care of all my dad's needs until the day he passed, and she has always been there for her family and friends.  My mom is my foundation, my rock, my inspiration and I want to be just like her when I grow up.  I will not grow old, because she has not grown old.  While my mom has been through so much more in her lifetime than I ever will, she taught me to CHOOSE to be HAPPY when I was very very little.   My mom rocks it at 87 1/2 .  My mom is my biggest fan, my cheerleader.  She is not quiet about it either.  She is the first one to "Like" my posts on Facebook!  She texts me every day to see if I am OK!  I don't know any other mom like mine.   My mom has aged, because that is what all of our bodies do.  They age.  But my mom is never going to grow old.  So today, I just want my mom to know how much I love and appreciate her! I am dedicating this to you mom!! I hope you enjoy it!!  It could have been written for us!  Keep dancing mom, keep being happy, keep wanting to help others.  Keep just being you!  Because children "live what they learn", and I am still learning.  And so far I have learned so much especially that I now know that at 88 I will be happy and have many friends...... Just Like My Mother Does.  xoxoxo

Here is the link to the official video and below it the song's lyrics dedicated 
to my mom, 
Joyce Kilcullen.  

(an ad plays first)



                                                      "Like My Mother Does"
[Verse 1]
People always say
I have a laugh
Like my mother does
Guess that makes sense
She taught me how to smile
When things get rough

I've got her spirit
She's always got my back
When I look at her
I think, I want to be just like that

[Chorus]
When I love I give it all I've got
Like my mother does
When I'm scared, I bow my head and pray
Like my mother does

When I feel weak and unpretty
I know I'm beautiful and strong
Because I see myself like my mother does

[Verse 2]
I never met a stranger
I can talk to anyone
Like my mother does
I let my temper fly
And she can walk away
When she's had enough

She sees everybody
For who they really are
I'm so thankful for her guidance
She helped me get this far

[Chorus]
When I love I give it all I've got
Like my mother does
When I'm scared, I bow my head and pray
Like my mother does

When I feel weak and unpretty
I know I'm beautiful and strong
Because
I see myself like my mother does

[Bridge]
She's a rock
She is grace
She's an angel
She's my heart and soul
She does it all

[Chorus]
When I love I give it all I've got
Like my mother does
When I'm scared, I bow my head and pray
Like my mother does

When I'm weak and unpretty
I know I'm beautiful and strong
Because
I see myself like my mother does
Like my mother does

I hear people saying
I'm starting to look like my mother does

Thursday, January 22, 2015

A SURVIVOR sharing the gift of HOPE!

I am Katherine Kilcullen, & known online as #TEAMNANNY, created by my grandson Isaac who when just 6yrs old put our LIVESTRONG wristbands together & had me promise that we would always be a "team".  Little did he know that his dream of our team would help to inspire so many more to join us on this journey.  This is my story.......

We *ALL*  know somebody affected by this disease!  I had it, my mother had it, my father, my niece, my BEST friends..... too many to keep count anymore!  Cancer has already taken too many of our loved ones from us too soon!
My story has been shared online on my blog, you-tube channel and Facebook – because I believe that knowledge is power and had I been diagnosed earlier I would have had a different outcome. The fact that I even survived surpassed all statistics and my prognosis was grim, outcome I was told was dismal.  I feel that sharing this hope, that if you don't give up on your dreams because of cancer, then you will be stronger for the journey it brings you on.  I am me.  I am not my cancer.  And cancer cannot destroy love and hope.  I respect those who want to keep their cancer story private.  It is a difficult journey and it is not easy to wear your heart out on your sleeve.  But I have learned from other survivors stories that by sharing my story, I will help reduce the stigma associated with cancer, add my face to the 32 million people worldwide, and let people know that you are a not a statistic.  Each person’s treatment plan is personalized, and that we all have the right to patient centered care.  And every survivor needs #HOPE!
In January 2006 I was diagnosed with stage IIICUterine Papillary Serous Carcinoma: a rare and highly malignant form of endometrial adenocarcinoma.  My treatment began with a radical hysterectomy, a bilateral aslpingo-oophorectomy, debulking as much tumor as possible, followed my adjuctive therapy which consisted of six cycles of chemotherapy treatments with combined drugs carboplatin (Paraplatin) with paclitaxel (Taxol), followed by thirty five abdo-pelvic radiation treatments, and brachytherapy.  I remember the whole time wondering just how bad this was when everyone treating me was in hazmat suits, protecting themselves from the poison they were administering to me to kill my cancer cells. 
If only it killed just the cancer cells...... I have since had major lupus flares following my cancer treatment, and have life long side effects, the collateral damage post cancer  including but not limited to.....
·Enteric NS Neuropathy – 2 o chemo (2008) ·  Celiac Disease (dx biopsy 2008) ·  Right leg AK amputation surgery ( September 16, 2010) ·  Right leg AK amputation revision surgery (March 30, 2011) ·  Radiation Colitis – (June 2011) ·  Moderate radiation proctitis with vascular ectasia & fibrotic area (October 2011) · Argon plasma coagulation – October 2011, December 2011 and March 2012 ·  Left leg AK amputation surgery (September 17, 2012) ·  Left leg AK amputation revision surgery (April 27, 2013) ·  Argon plasma coagulation – February 2014.  
I made educated choices in my treatment plan.  I got the facts on what was the best treatment plan for the type of cancer I had.  I feel that because the support I received from LIVESTRONG empowered me to be my own advocate, it made a huge difference in my outcome.  I was inspired by other survivor stories, found out what worked for them, and took what I needed from that information and applied it to my own fight. It was a crash course in survival skills 101.  Thank God for the support I received from LIVESTRONG.  You just reach out to them and suddenly you have an army of people who are wanting to help. 
I continue to fight the collateral damage of cancer treatments every single day.  But I am still alive to make a difference! Too many of our loved ones have ran out of time!  Through these heartbreaks we should be inspired to honor the memory of those we have lost and those warriors still fighting by our volunteer work and fundraising efforts!  The LIVESTRONG FOUNDATION was there the moment I was diagnosed until this very day..... I say “Let the yellow shine” on those affected by cancer!  And YOU can help me pay it forward to our loved ones diagnosed today.
*Unity is strength*
 *Knowledge is power*
 *Attitude is everything*
The LIVESTRONG Foundation serves people affected by cancer NOW from the minute of diagnosis and empowers them to take action against this disease that is now the world's leading cause of death. LIVESTRONG has become a symbol of hope and inspiration to people affected by cancer around the world.  
It was my dream to survive the cancer and gain enough health, and do what I could to become a LIVESTRONG leader.  In 2014 my dream became reality!  "UNITY IS STRENGTH" is the truth. Please, join me and #TEAMNANNY, united and help me support the LIVESTRONG Foundation.   I am #STILLSTRONG......  Thanks to my loved ones, and my "yellow family" @LIVESTRONG!  My motto is "Never Live A Life Less Than You Are Capable Of"

Follow us online! We are sharing hope online! Just use the hashtag #teamnanny.  



MARK YOU CALENDARS NOW ..... SATURDAY MAY 9, 2015 WILL BE OUR ANNUAL #TEAMNANNY #OUR#RACE#YOUR#PACE EVENT!  MORE NEWS TO FOLLOW SOON! 

*Love* & *Light* has been my signature for the past 20 years, and may it continue to help lead you when darkness comes.


Namesté

TEAMNANNY Blog


@teamnanny on Twitter





Sunday, October 26, 2014

DAKOTA'S STORY - SPCA 2 SERVICE DOG

Dakota's Story - SPCA 2 SERVICE DOG







Patience was my Service Dog for so many years, that the thought of being without that independence terrified me..... until...... an angel sent me Dakota....... and all the boy needed...... was a JOB! This is his story..... may it inspire you to consider rescuing a dog. Dedicated to the memory of Cpl. Nathan Cirillo who rescued so many shepherds! His family has our love, prayers and respect! God Bless you all. 
Follow Dakota's life as a service dog on his Facebook page  right HERE!




*Love* & *Light* has been my signature for the past 20 years, and may it continue to help lead you when darkness comes.


Namesté

TEAMNANNY Blog


@teamnanny on Twitter









Tuesday, September 16, 2014

It's my AMPUVERSARY!! And I "went the distance' - and 'I will again' !



Today is a VERY emotional day for me, as I heard the words, "You will never walk again"! September 16, 2010 was the beginning of FOUR amputation surgeries. September 16, 2012 they took my second leg. But at Livestrong We know "Unity is Strength, Knowledge is Power and Attitude is Everything". I not only walked, without assistance - I even dribbled & shot baskets. Happy AMPUVERSARY to me! I will be up walking again soon, because‪#‎thisfightispersonal‬‪#‎wewearlivestrong‬. It has been a rough year, but there have been worse.... and I have #hope.  

Watch the journey here on my YouTube channel! Don't forget to subscribe!

*Love* & *Light* has been my signature for the past 20 years, and may it continue to help lead you when darkness comes.


Namesté

TEAMNANNY Blog


@teamnanny on Twitter





Friday, March 14, 2014

The TEAMNANNY - LIVESTRONG Connection! Why?

The TEAMNANNY - LIVESTRONG Connection! Why? 

More and more as the triumphs stack up I realize that people are interested and inspired but what I can do when I keep on trying and by my never giving up.  Not that giving up was ever an option.  My knee surgeries began in 1972 and after *years* of orthopedic surgeries, lupus and cancer hell,  I saw that it was possible to "GO THE DISTANCE" from others survivors at LIVESTRONG

I AM A LATE STAGE UPSC SURVIVOR LIVING WITH LUPUS AND LIVESTRONG LEADER FOR 2014

I am not TEAMNANNY.  I am KATHERINE KILCULLEN and "NANNY" to our adorable grandchildren. The TEAM are the family & friends that never give up on me no matter what.   When little six year old Isaac put our yellow LIVESTRONG bracelets together and said, "Let's be a team Nanny?" he had no idea what strength he instilled upon me at that moment.  I took that strength and carried it through to what is now a brand of strength and inspiration for thousands of followers all over the planet.  Did that little boy think he could make such a difference?  No, but as he grows, he will surely find out that his *idea* has helped so many people, and that is what true leadership is all about, leading by example.  I am proud to have Isaac as my captain!  I am forever grateful to him for creating "TEAMNANNY" and for the joy it has brought us both!  And we shall take "TEAMNANNY" and make it into something so much bigger than the two of us.  We will take it and make it our mission to help others through the same kind of support we have received.  

I was so inspired by people who supported me at the LIVESTRONG Foundation that I decided to throw all of my support back to them as long as I survive.  I have decided to help the LIVESTRONG Foundation at www.livestrong.org by being the very best example of what they do.  I can lead teams to victory, I can wear my support and I can inform others that the work that they do helps survivors NOW.  In the moment.  Just call or write.  It is that simple.  They can help.


As I said, I am a late stage cancer survivor living with Lupus. My cancer left me with lifelong physical and mental challenges.  I truly believe it was with the survivor tools, (guides) and support from Livestrong that I defied all the odds and made it this far.  What does Livestrong mean to me? I live it, I wear it, and I promote it.  What I cannot donate in $$ I will donate in my time and energy that I have.  Obviously being sick and constantly having amputation surgeries has limited how much I can accomplish to help The LIVESTRONG Founation up to now, but I do know that I am making a difference, and you can too.  Now that I am a LIVESTRONG Global Leader I am more determined than ever.  I am putting my effort were I believe I can be the most help and I am doing the very best I can on any given day.  The "team" has also helped me by giving their best as well.  Here is my new contact cards!  I have decided to prepared the next time somebody shows interest in my skateboarding, or other survivor achievements!


To all my supporters....THANK YOU..... as this journey is about you too.  Your support makes me stronger! Together we can help even more people get through some of the toughest days of their lives by keeping hope alive.   

It is both a privilege and an honor to wear my LIVESTRONG GEAR as I face some of the toughest challenges of my life! 
When you donate to livestrong.org, or buy and wear LIVESTRONG you are helping the organization help other people just like and including ME!  
THANK YOU LIVESTRONG FOR BELIEVING IN ME! 
THANK YOU TEAMNANNY FOR BEING MY STRENGTH AND INSPIRATION! Thank you to my oncologists, lupus doctors, orthopedic surgeons, especially Dr. Sophie Mottard, my medical team too many to mention all, for for believing in me.  You keep putting me back together and I will keep raising the bar.  

To donate to our fundraising efforts or to join our team here is where you go: 

Let the YELLOW shine!  



"NEVER LIVE A LIFE LESS THAN YOU ARE CAPABLE OF"

Tuesday, February 18, 2014

#OUR#RACE#YOUR#PACE BY #TEAMNANNY



NEWS!!! NEWS!!! NEWS!!! NEWS!!!
SATURDAY MAY 10TH!
*NOTE - PLEASE EMAIL ME IF YOU PLAN ON ATTENDING*  kath@teamnanny.ca

TEAMNANNY’
2014

#OUR#RACE#YOUR#PACE

MAY 10, 2014 
COMMUNITY GRASSROOTS FUNDRAISING EVENT 
Benefiting 
The LIVESTRONG FOUNDATION

The LIVESTRONG Foundation unites, inspires and empowers people affected by cancer now.  LIVESTRONG provides free support services to anyone affected by cancer today! LIVESTRONG has always been there for me during and after my cancer treatments and now #TEAMNANNY with YOUR help will be there to help others with their journey.  "KNOWLEDGE IS POWER"! 

Please support me and join my "TEAM" 

ROUTE: PLAN TO MEET AT 596 STARLING BETWEEN 9:30-10:00 (DORVAL NORTH) ROUTE IS ON THE MAP BELOW.  THERE ARE A FEW REST AREAS.
THERE IS EXTRA PARKING A BLOCK AWAY AT SURREY COMMUNITY CENTER .



TEAMNANNY'S CAPTAIN ISAAC
OUR FUTURE IS BRIGHT! 


WE ALL KNOW SOMEBODY AFFECTED BY THIS DISEASE! CANCER HAS ALREADY TAKEN TOO MANY TOO SOON!

My story has been pretty transparent.
In January 2006 I was diagnosed with stage IIIC Uterine Papillary Serous Carcinoma (UPSC): a rare and highly malignant form of endometrial edenocarcinoma cancer with a very dismal prognosis.  I remember the whole time wondering just how bad this was when everyone treating me was in hazmat suits, protecting themselves from the poison they were administering to me to kill my cancer cells....... EXCEPT the treatment did not only kill my cancer cells, it caused a chain reaction that has left me as a double amputee with damage to my stomach and colon..... 
I continue to fight the collateral damage of cancer treatments every single day.  But I am still alive to make a difference! 
TOO MANY OF YOUR FAMILIES AND FRIENDS RAN OUT OF TIME!  
Through these heartbreaks we should be inspired to honor those we have lost and those warriors still fighting by our volunteer work and fundraising efforts!  

(An explanation on our event name! I cannot do the traditional 'run' 'walk' 'bike' 'swim' because of the way I am (double above knee amputee).  So we are having an all inclusive family event.  The map of the route is provided above.   Participants can choose to run it, walk it, bike it, skateboard, jog with baby stroller, or use a wheelchair! Whatever ability, there will be something for everyone!)  Supporters of TEAMNANNY that are out of town can still support us by joining our team and do their own race their way on May 10th  or by making their donation to our efforts on our team page!

No more losses to cancer – 

no one should suffer alone and YOU can make a difference!

My friend and fellow LIVESTRONG leader LOUAY, from Cairo-Egypt pulling me the rest of the tribute walk in Austin Texas last week when the heat took it's toll on my fragile lungs...


No more losses to cancer! 
 YOU can make a difference in a cancer patients life today!

Unity is Strength
Knowledge is Power

Attitude is Everything

JOIN US ON MAY 10TH! 
#OUR#RACE#YOUR#PACE BY #TEAMNANNY


THANK YOU FROM #TEAMNANNY

Here are the links for the event:

TEAMNANNY’S #OUR#RACE#YOUR#PACE BENEFITING the LIVESTRONG Foundation.
Katherine’s personal fundraising page!.



 We thank you for your support!

Other ways to consider helping:
Forward this email to your contacts! If each person did that we could possibly reach our fundraising goal of $5,000.00 for 2014
Partner with us.........
Donate a raffle prize for the event participants!
Donate refreshments for after the walk.  Remember your brand will be shown in event photos throughout the neighborhood and on the internet. 
Offer printing services.  You can add your company logo - advertising for you - and helping cancer survivors!
Donate office supplies to make awareness signs (poster paper, markers, ribbons,)
Donate T-shirts.