Wednesday, May 16, 2012

I May Be a Patient, BUT I am NOT PATIENT!

I May Be a Patient, BUT I am NOT PATIENT!

This month has been a real rollercoaster of emotions for us.  Now we should be used to that by now, André and I.  It is just our journey, our life.  We have been all over the map with my health, and just life “stuff”.  But it just seems for every step forward, we are taking two back.
In March we had cleared all the hurdles to just get my health strong enough to have the consult with the orthopedic surgeon.  Dr. “Surgeon”, is a wonderful young mother, world renowned orthopedic oncologist, and very popular with her colleagues here in Montreal.  She had discussed “options” with us, and it seemed the only way to get me out of this life of incurable pain, was to amputate my other leg.  I am taking a lot of pain medication, but the pain is still stronger.  To take the dosage I would need to be able to be comfortable brings side effects of nausea, itching, grogginess, and impairs my already strained cognitive function.   I want a life where I do not hurt 24/7.  I want a life without the continued narcotics, and the damage that they will do to my other organs.  I want a life period.   Damn, I have been a patient for over 40 years.  I know my body better than anyone, and I was up to listening to all the possible options.  Amputation was the agreed upon decision.  So we followed Dr. S’s instructions, and we had the MRI done, (I say “we” because André has been to every single one of these appointments with me).  We had the x-rays done, we had the psychiatry appointment done, and had the go ahead from the psychiatry department.  Then came pre-op, and after a full day of pre-admissions I was officially on the admission waiting list and we were good to go.  We were just waiting for the “call” to come in.   Just give us a DATE!
So what do I know for sure?  I know that Dr. Surgeon has never called ME.  I know that Dr. B’s office should be calling me to go in and meet him.  The fax was written “URGENT”, but hey my “URGENT” and theirs may not have the same definition.
I I am a patient, yes.  The reality is, I am done, I am fed up,  I have no PATIENCE!

RING PHONE RING!